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Zmags
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME FOUNDATION, UK AND IRELAND
R
REACHING OUT
Belfast conference
PAGES 5-8
October 2014
Chairman's
pledge
PAGE 2
WALKING ON WATER
Fundraising: See Pages 9-12
2 news
Get all the latest news, information, and research on our website: www.cdls.org.uk
CdLS FOUNDATION
UK AND IRELAND
The Foundation is a registered charity in the
UK (no 1054033) and part of the global
federation of CdLS family support groups
around the world.
CdLS Foundation
The Tower, Guardian Avenue
North Stifford, Essex RM16 5US
GENERAL MANAGER
Jacquie Griffin
Tel: 01375 376439
E-mail: info@cdls.org.uk
Web: www.cdls.org.uk
BOARD OF TRUSTEES
Executive Committee
Chairman – David Axtell (Essex)
Vice-chairman – Andrew Conlon (Surrey)
T
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME
2 news Get all the latest news, informatio
news 3
4 news Get all the latest news, informatio
conference report 5 THE BELFAST SHOW Bel
6 conference report Get all the latest n
conference report 7 Left: Paul Barlow
8 conference report Get all the latest ne
marathons 9 Journo
10 f u n d r a i s i n g Get all the latest ne
f u n d r a i s i n g 11 Total
12 r e s e a r c h / f u n d r a i s i n g