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■ THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME FOUNDATION, UK AND IRELAND
R
REACHING OUT
February 2014
ANNE'S
Belfast
bound
PAGE 2
FRANK
DIARY
Gloucester
conference
PAGES 6-11
See Page 5
2 news
Get all the latest news, information, and research on our website: www.cdls.org.uk
CdLS FOUNDATION
UK AND IRELAND
The Foundation is a registered charity in the
UK (no 1054033) and part of the global
federation of CdLS family support groups
around the world.
CdLS Foundation
The Gatehouse, 104 Lodge Lane
Grays Essex. RM16 2UL
GENERAL MANAGER
Jacquie Griffin
Tel: 01375 376439
Fax: 01375 404478
E-mail: info@cdls.org.uk
Web: www.cdls.org.uk
BOARD OF TRUSTEES
Manage
■ THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROM
2 news Get all the latest news, informati
news 3 Your chance for a Titanic weekend i
4 research Get all the latest news, infor
people 5
6 conference report Get all the latest n
conference report 7 Gloucester cathe
8 conference report Get all the latest n
conference report 9
10 c o n f e r e n c e r e p o r t Get all
c o n f e r e n c e r e p o r t 11 THE BEN
12 i n t e r n a t i o n a l c o n f e r e n
i n t e r n a t i o n a l c o n f e r e n c e
14 i n t e r n a t i o n a l c o n f e r e n
f u n d r a i s i n g 15 Pins collar cash for
16 f u n d r a i s i n g Get all the latest ne