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THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME FOUNDATION, UK AND IRELAND
R
REACHING OUT
February 2018
TALENT
SPOT
CAN YOU
HELP STUDY
ON CdLS
BEHAVIOUR
PAGE 10
SAM'S BID FOR TV STARDOM
PAGE 10
BOOK
NOW FOR
EDINBURGH
CONFERENCE
PAGE 3
2 news
Get all the latest news, information, and research on our website: www.cdls.org.uk
CdLS FOUNDATION
UK AND IRELAND
The Foundation is a registered charity in the
UK (no 1054033) and part of the global
federation of CdLS family support groups
around the world.
CdLS Foundation
The Tower, Guardian Avenue
North Stifford, Essex RM16 5US
GENERAL MANAGER
Jacquie Griffin
Tel: 01375 376439
E-mail: info@cdls.org.uk
Web: www.cdls.org.uk
BOARD OF TRUSTEES
Elected officials
Chair
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME
2 news Get all the latest news, informatio
news 3 Edinburgh is a spectacular ve
4 conference report Get all the latest n
conference report 5 Conference dele
6 UK conference report Get all the lat
UK conference report 7 r biggest turn
8 UK conference report Get all the lat
UK conference report 9 Chris has
10 r e s e a r c h Get all the latest news, in
f u n d r a i s i n g 11 Open garden is a blo
12 f u n d r a i s i n g Get all the latest ne