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Best regards
Zmags
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME FOUNDATION, UK AND IRELAND
R
REACHING OUT
August 2017
CdLS NEEDS YOUR HELP
PAGES 2 & 12
ROARING
FORTIES
HOW DARA DEFIED THE ODDS
PAGE 7
BOOK
NOW FOR
OCTOBER
CONFERENCE
PAGES 2/3
2 news
Get all the latest news, information, and research on our website: www.cdls.org.uk
CdLS FOUNDATION
UK AND IRELAND
The Foundation is a registered charity in the
UK (no 1054033) and part of the global
federation of CdLS family support groups
around the world.
CdLS Foundation
The Tower, Guardian Avenue
North Stifford, Essex RM16 5US
GENERAL MANAGER
Jacquie Griffin
Tel: 01375 376439
E-mail: info@cdls.org.uk
Web: www.cdls.org.uk
BOARD OF TRUSTEES
Elected officials
Chairman
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME
2 news Get all the latest news, informatio
news 3 as CdLS income drops
4 people Get all the latest news, informat
people 5 Cafe assistant Lee with team m
6 UK conference report Get all the lat
UK conference report 7 en to the expe
8 UK conference report Get all the lat
UK conference report 9
10 U K c o n f e r e n c e r e p o r t Get
with the crowd cheering you on.The sights you see
12 f u n d r a i s i n g Get all the latest ne