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<br /> AUTISMAdvocate<br /> SECOND EDITION 2008, Volume 51<br /> R2<br /> Let's Hear it for<br /> the Caregivers!<br /> Lessons and Perspectives from ose<br /> Who Care for People on the Spectrum<br /> IN THIS ISSUE:<br /> FINDING HOUSING AND SERVICES FOR YOUR ADULT CHILD<br /> Always a Sister: Helping my Brother and Other Adults on the Autism Spectrum<br /> Caregiving in Rural America<br /> Navigating the System: After the Diagnosis<br /> And more…<br /> www.autism-society.org<br /> ADVERTISEMENT<br /> TheSon-RiseProgram®<br /> Createdbyparents,forparents<br /> HOME OF THE SON-RISE PROGRAM®1974<br /> The Son-Rise Program was originated in 1974 by two parents,<br /> 2080 S. Undermountain Road<br /> Barry Neil Kaufman (Best-selling author, Son-Rise: The Miracle Continues) Sheffield, MA 01257 USA<br /> and Samahria Lyte Kaufman for their son. Their <a title="ASA_2nded_08preflighted.indd page 1" href="http://viewer.zmags.com/publication/7e2baa68?page=1"> AUTISMAdvocate SECOND EDITION 2008, Volume 51 R2</a> <a title="ASA_2nded_08preflighted.indd page 2" href="http://viewer.zmags.com/publication/7e2baa68?page=2"> ADVERTISEMENT TheSon-RiseProgram® Createdbyparent</a> <a title="ASA_2nded_08preflighted.indd page 3" href="http://viewer.zmags.com/publication/7e2baa68?page=3"> CONTENTS </a> <a title="ASA_2nded_08preflighted.indd page 4" href="http://viewer.zmags.com/publication/7e2baa68?page=4"> MESSAGE FROM ASA PRESIDENT & CEO ere are mor</a> <a title="ASA_2nded_08preflighted.indd page 5" href="http://viewer.zmags.com/publication/7e2baa68?page=5"> ADVERTISEMENT Annou ncingENA™L Language Monit</a> <a title="ASA_2nded_08preflighted.indd page 6" href="http://viewer.zmags.com/publication/7e2baa68?page=6"> MESSAGE FROM THE ASA BOARD CHAIR Several years</a> <a title="ASA_2nded_08preflighted.indd page 7" href="http://viewer.zmags.com/publication/7e2baa68?page=7"> ADVERTISEMENT Êȓ«iʎiÞÃÌÀœŽiÊVœÕ`Ê …i«Ê>ÊV…ˆ</a> <a title="ASA_2nded_08preflighted.indd page 8" href="http://viewer.zmags.com/publication/7e2baa68?page=8"> SPOTLIGHT Whenatage28,then</a> <a title="ASA_2nded_08preflighted.indd page 9" href="http://viewer.zmags.com/publication/7e2baa68?page=9"> Padich adds, “e positive side of that is when yo</a> <a title="ASA_2nded_08preflighted.indd page 10" href="http://viewer.zmags.com/publication/7e2baa68?page=10"> SPOTLIGHT adults on the spectrum. In many cases</a> <a title="ASA_2nded_08preflighted.indd page 11" href="http://viewer.zmags.com/publication/7e2baa68?page=11"> ADVERTISEMENTS Use Hanen’s Research-Based Guidebo</a> <a title="ASA_2nded_08preflighted.indd page 12" href="http://viewer.zmags.com/publication/7e2baa68?page=12"> Easingthe Transition Padich emphasizes that when </a> <a title="ASA_2nded_08preflighted.indd page 13" href="http://viewer.zmags.com/publication/7e2baa68?page=13"> some flexible underwriting and is not restricted t</a> <a title="ASA_2nded_08preflighted.indd page 14" href="http://viewer.zmags.com/publication/7e2baa68?page=14"> SPOTLIGHT example, caregivers who own a home ca</a> <a title="ASA_2nded_08preflighted.indd page 15" href="http://viewer.zmags.com/publication/7e2baa68?page=15"> ADVERTISEMENT </a> <a title="ASA_2nded_08preflighted.indd page 16" href="http://viewer.zmags.com/publication/7e2baa68?page=16"> NARPAA FEATURE f rt t Res den i t f r </a> <a title="ASA_2nded_08preflighted.indd page 17" href="http://viewer.zmags.com/publication/7e2baa68?page=17"> ADVERTISEMENTS IN 2008, VOTE 4AUTISM! </a> <a title="ASA_2nded_08preflighted.indd page 18" href="http://viewer.zmags.com/publication/7e2baa68?page=18"> FEATURE - Services out of home (24 hours</a> <a title="ASA_2nded_08preflighted.indd page 19" href="http://viewer.zmags.com/publication/7e2baa68?page=19"> Mo.; Kim Sanders, Grafton School, Inc., Wincheste</a> <a title="ASA_2nded_08preflighted.indd page 20" href="http://viewer.zmags.com/publication/7e2baa68?page=20"> FEATURE NARPAAStandards Once the</a> <a title="ASA_2nded_08preflighted.indd page 21" href="http://viewer.zmags.com/publication/7e2baa68?page=21"> ADVERTISEMENT 5BLF ZPVSPXOIBO</a> <a title="ASA_2nded_08preflighted.indd page 22" href="http://viewer.zmags.com/publication/7e2baa68?page=22"> FEATURE Always a Sister Helping My Brother and O</a> <a title="ASA_2nded_08preflighted.indd page 23" href="http://viewer.zmags.com/publication/7e2baa68?page=23"> We never seemed to stop fighting with</a> <a title="ASA_2nded_08preflighted.indd page 24" href="http://viewer.zmags.com/publication/7e2baa68?page=24"> FEATURE WEARING TWO HATS As executive directo</a> <a title="ASA_2nded_08preflighted.indd page 25" href="http://viewer.zmags.com/publication/7e2baa68?page=25"> ADVERTISEMENT </a> <a title="ASA_2nded_08preflighted.indd page 26" href="http://viewer.zmags.com/publication/7e2baa68?page=26"> FEATURE When a Loved One Dies Communicating</a> <a title="ASA_2nded_08preflighted.indd page 27" href="http://viewer.zmags.com/publication/7e2baa68?page=27"> Photo courtesy of Elizabeth Roth Roth and her so</a> <a title="ASA_2nded_08preflighted.indd page 28" href="http://viewer.zmags.com/publication/7e2baa68?page=28"> FEATURE Photo courtesy of Elizabeth Roth Andrew</a> <a title="ASA_2nded_08preflighted.indd page 29" href="http://viewer.zmags.com/publication/7e2baa68?page=29"> ADVERTISEMENTS His Behavior. Your Challenge. </a> <a title="ASA_2nded_08preflighted.indd page 30" href="http://viewer.zmags.com/publication/7e2baa68?page=30"> FEATURE of some other damaging gesture. “It was</a> <a title="ASA_2nded_08preflighted.indd page 31" href="http://viewer.zmags.com/publication/7e2baa68?page=31"> ADVERTISEMENTS </a> <a title="ASA_2nded_08preflighted.indd page 32" href="http://viewer.zmags.com/publication/7e2baa68?page=32"> FEATURE Caregiving in Rural America Addres</a> <a title="ASA_2nded_08preflighted.indd page 33" href="http://viewer.zmags.com/publication/7e2baa68?page=33"> and community change to increase supports for p</a> <a title="ASA_2nded_08preflighted.indd page 34" href="http://viewer.zmags.com/publication/7e2baa68?page=34"> FEATURE • e average out-of-pocket cost for a </a> <a title="ASA_2nded_08preflighted.indd page 35" href="http://viewer.zmags.com/publication/7e2baa68?page=35"> If rural caregivers, like their urba</a> <a title="ASA_2nded_08preflighted.indd page 36" href="http://viewer.zmags.com/publication/7e2baa68?page=36"> FEATURE Culturally Competent Care Working with B</a> <a title="ASA_2nded_08preflighted.indd page 37" href="http://viewer.zmags.com/publication/7e2baa68?page=37"> THE CAREGIVER DILEMMA: TREATMENT OPTIONS </a> <a title="ASA_2nded_08preflighted.indd page 38" href="http://viewer.zmags.com/publication/7e2baa68?page=38"> FEATURE times it is difficult to find bilingual </a> <a title="ASA_2nded_08preflighted.indd page 39" href="http://viewer.zmags.com/publication/7e2baa68?page=39"> ADVERTISEMENT </a> <a title="ASA_2nded_08preflighted.indd page 40" href="http://viewer.zmags.com/publication/7e2baa68?page=40"> FEATURE “Pittsburgh’s Hispanic and </a> <a title="ASA_2nded_08preflighted.indd page 41" href="http://viewer.zmags.com/publication/7e2baa68?page=41"> ADVERTISEMENT Your “G o-To” ce utism Resour A</a> <a title="ASA_2nded_08preflighted.indd page 42" href="http://viewer.zmags.com/publication/7e2baa68?page=42"> This is the first in a series of articles appear</a> <a title="ASA_2nded_08preflighted.indd page 43" href="http://viewer.zmags.com/publication/7e2baa68?page=43"> Finding the financial resources to pay for treatme</a> <a title="ASA_2nded_08preflighted.indd page 44" href="http://viewer.zmags.com/publication/7e2baa68?page=44"> NAVIGATING THE Having supports outside</a> <a title="ASA_2nded_08preflighted.indd page 45" href="http://viewer.zmags.com/publication/7e2baa68?page=45"> Online Resources AUTISM RESOURCES A comprehensiv</a> <a title="ASA_2nded_08preflighted.indd page 46" href="http://viewer.zmags.com/publication/7e2baa68?page=46"> Personal Perspectives Image used for illustration</a> <a title="ASA_2nded_08preflighted.indd page 47" href="http://viewer.zmags.com/publication/7e2baa68?page=47"> ADVERTISEMENT </a> <a title="ASA_2nded_08preflighted.indd page 48" href="http://viewer.zmags.com/publication/7e2baa68?page=48"> Personal Perspectives Image used for illustration</a> <a title="ASA_2nded_08preflighted.indd page 49" href="http://viewer.zmags.com/publication/7e2baa68?page=49"> ADVERTISEMENTS </a> <a title="ASA_2nded_08preflighted.indd page 50" href="http://viewer.zmags.com/publication/7e2baa68?page=50"> Personal Perspectives Image used for illustratio</a> <a title="ASA_2nded_08preflighted.indd page 51" href="http://viewer.zmags.com/publication/7e2baa68?page=51"> Personal Perspectives Image used for illustratio</a> <a title="ASA_2nded_08preflighted.indd page 52" href="http://viewer.zmags.com/publication/7e2baa68?page=52"> Personal Perspectives Image used for illustration</a> <a title="ASA_2nded_08preflighted.indd page 53" href="http://viewer.zmags.com/publication/7e2baa68?page=53"> </a> <a title="ASA_2nded_08preflighted.indd page 54" href="http://viewer.zmags.com/publication/7e2baa68?page=54"> tion” to de-escalate a meltdown. He literally offe</a> <a title="ASA_2nded_08preflighted.indd page 55" href="http://viewer.zmags.com/publication/7e2baa68?page=55"> </a> <a title="ASA_2nded_08preflighted.indd page 56" href="http://viewer.zmags.com/publication/7e2baa68?page=56"> Chapter 4: Building Your Dream Team Chapter 5: A</a> <a title="ASA_2nded_08preflighted.indd page 57" href="http://viewer.zmags.com/publication/7e2baa68?page=57"> l ing F i a m p e H l i e s w i t</a> <a title="ASA_2nded_08preflighted.indd page 58" href="http://viewer.zmags.com/publication/7e2baa68?page=58"> 2008 ASA National Awards ASACHAPTEROFTHEYEAR: An </a> <a title="ASA_2nded_08preflighted.indd page 59" href="http://viewer.zmags.com/publication/7e2baa68?page=59"> APRIL 2008 – APRIL 2009 BOUNCE FOR AUTISM Images</a> <a title="ASA_2nded_08preflighted.indd page 60" href="http://viewer.zmags.com/publication/7e2baa68?page=60"> Enjoying SunnyOrlando atASA thisyear? Photo cour</a> <a title="ASA_2nded_08preflighted.indd page 61" href="http://viewer.zmags.com/publication/7e2baa68?page=61"> ADVERTISEMENT All plans are important... </a> <a title="ASA_2nded_08preflighted.indd page 62" href="http://viewer.zmags.com/publication/7e2baa68?page=62"> WHAT'S NEW AT ASA NEWS First “Bounce f</a> <a title="ASA_2nded_08preflighted.indd page 63" href="http://viewer.zmags.com/publication/7e2baa68?page=63"> ADVERTISEMENT I]ZEZdeaZ7Z]^cYi]Z;VXZhd[6ji</a> <a title="ASA_2nded_08preflighted.indd page 64" href="http://viewer.zmags.com/publication/7e2baa68?page=64"> WHAT'S NEW AT ASA NEWS U.N. Holds Briefing in Ob</a> <a title="ASA_2nded_08preflighted.indd page 65" href="http://viewer.zmags.com/publication/7e2baa68?page=65"> ASA NEWS Photos courtesy of Jeff & Catherine Norm</a> <a title="ASA_2nded_08preflighted.indd page 66" href="http://viewer.zmags.com/publication/7e2baa68?page=66"> WHAT'S NEW AT ADVOCACY Photo courtesy of Bill K</a> <a title="ASA_2nded_08preflighted.indd page 67" href="http://viewer.zmags.com/publication/7e2baa68?page=67"> could potentially benefit the autism community. Fo</a> <a title="ASA_2nded_08preflighted.indd page 68" href="http://viewer.zmags.com/publication/7e2baa68?page=68"> WHAT'S NEW AT CONFERENCES/CHAPTER NEWS </a> <a title="ASA_2nded_08preflighted.indd page 69" href="http://viewer.zmags.com/publication/7e2baa68?page=69"> ADVERTISEMENTS </a> <a title="ASA_2nded_08preflighted.indd page 70" href="http://viewer.zmags.com/publication/7e2baa68?page=70"> WHAT'S NEW AT CHAPTER NEWS Navy veteran, colleg</a> <a title="ASA_2nded_08preflighted.indd page 71" href="http://viewer.zmags.com/publication/7e2baa68?page=71"> ADVERTISEMENT +,%%%ldgYh#(,%%%e]gVhZh#+Wjiidch# D</a> <a title="ASA_2nded_08preflighted.indd page 72" href="http://viewer.zmags.com/publication/7e2baa68?page=72"> Our Children Deserve Better Than Labels Aut</a>