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Best regards
Zmags
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME FOUNDATION, UK AND IRELAND
R
REACHING OUT
March 2017
CHUTING
STARS
WHY CdLS IS FLYING HIGH
– PAGE 12
BOOK
NOW FOR
DUBLIN
CONFERENCE
PAGES 2/3
2 news
Get all the latest news, information, and research on our website: www.cdls.org.uk
CdLS FOUNDATION
UK AND IRELAND
The Foundation is a registered charity in the
UK (no 1054033) and part of the global
federation of CdLS family support groups
around the world.
CdLS Foundation
The Tower, Guardian Avenue
North Stifford, Essex RM16 5US
GENERAL MANAGER
Jacquie Griffin
Tel: 01375 376439
E-mail: info@cdls.org.uk
Web: www.cdls.org.uk
BOARD OF TRUSTEES
Elected officials
Chairman – David Axtell (Essex)
Vice-chairman – Andrew Conlon (Surrey)
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME
2 news Get all the latest news, informatio
news 3 to a year of change taken up by Dr Pet
4 people Get all the latest news, informat
people 5 Meet the professionals The CdL
6 UK conference report Get all the lat
UK conference report 7 in the histori
8 UK conference report Get all the lat
UK conference report 9 Conferences ca
10 U K c o n f e r e n c e r e p o r t Get
Sharks on the attack for CdLS Angela Bishop has
12 f u n d r a i s i n g Get all the latest ne