If you are visually impaired or blind, you can visit the PDF version by Pressing CONTROL + ALT + 4
You need a JavaScript-enabled browser to view this Publication
Please follow these steps to view the Publication:
Enable JavaScript in your browser
Refresh this page
Best regards
Zmags
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME FOUNDATION, UK AND IRELAND
R
Liverpool
conference:
Special
report
PAGES 4-9
REACHING OUT
September 2015
BLAZING SADDLES
Fundraising: See Pages 10-12
2 news
Get all the latest news, information, and research on our website: www.cdls.org.uk
CdLS FOUNDATION
UK AND IRELAND
The Foundation is a registered charity in the
UK (no 1054033) and part of the global
federation of CdLS family support groups
around the world.
CdLS Foundation
The Tower, Guardian Avenue
North Stifford, Essex RM16 5US
GENERAL MANAGER
Jacquie Griffin
Tel: 01375 376439
E-mail: info@cdls.org.uk
Web: www.cdls.org.uk
BOARD OF TRUSTEES
Executive Committee
Chairman – David Axtell (Essex)
Vice-chairman – Andrew Conlon (Surrey)
Treasurer – A
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME
2 news Get all the latest news, informatio
news 3 Take a trip on a steam e
4 news Get all the latest news, informatio
conference report 5 IN LIVERPOOL Top: Sc
6 conference report Get all the latest n
conference report 7
8 conference report Get all the latest n
conference report 9
10 f u n d r a i s i n g Get all the latest ne
f u n d r a i s i n g 11 top tips
12 r e s e a r c h / f u n d r a i s i n g